• Home/
  • Thalassemia and Sicklecell Society
Is this your profile?
Claim it
.

Thalassemia and Sicklecell Society

Provides free treatment and support to the patients with Thalassemia and Sickle Cell anemia

  • Bronze Certified 2023
  • FCRA
  • 80G
  • 12A
Transparency Rating:
Transparency Rating
The transparency rating is calculated based on the amount of information available for the organisation.
Claim this profile
Send Message
Bronze Certified Bronze Certified

About

  • Headquarters

    Hyderabad, Telangana

  • Since

    1998

Thalassemia and Sickle Cell Society was established in 1998 to provide appropriate treatment to Thalassemia patients with the objective of adding year Read mores to their lives and improve their quality of life. The organization has a humble start with just 20 patients at Banjara Hills, Hyderabad, and when the number grew it became hard for us to accommodate a larger group of patients. Today, more than 2780 children have benefited from our efforts. Thalassemia & Sickle Cell Society is the only place in Telangana & Andhra Pradesh wherein a transfusion centre with an attached blood bank is managing the treatment of Thalassemia & Sickle Cell anemia in Hyderabad. Their laboratory facility is recognised by Department of Scientific and Industrial Research (DSIR), Government of India since 2014. Their objective is to increase the life expectancy and enhance the quality of lives of all of those 2780 patients registered with the society. Services to Thalassemia patients including provision of saline washed blood and medical check up are free. The society also conducts awareness campaigns and activities on prevention programmes in the community.


Action

TSCS has established a well-maintained transfusion center, high-quality blood center, modern diagnostic laboratory, and advanced research center under one roof to support over 3600 registered patients.

Demographies Served

Cause Area

Sector

Sub Sector

Impact

TSCS provides free consultation, blood transfusion facilities, counseling, investigations, and meals for patients and parents daily, serving 40-60 patients per day.

Vision & Mission

TSCS is dedicated to ensuring the best quality treatment and quality of life for patients suffering with Thalassemia and Sickle Cell Anemia, with the goal of making Telangana Thalassemia-free.

Programs

  • Counseling of Thalassemia and Sickle Cell Society

    State

    It is an extremely unpleasant and mentally taxing experience to raise a child with Thalassemia. The family and parents require a solid emotional safety net. The Sickle Cell and Thalassemia Society has been a source of strength for parents and other family members for the past 24 years. Through its initiatives and events, the group has been effective in instilling hope in its constituents.

    Genetic Guidance
    The group conducts screening programmes to determine a person's thalassemia status with the help of foundations and organisations that share its goals. More than a thousand school-age children have undergone screening for thalassemia and sickle cell disease at various schools, as of this writing.

  • Aarogyasri Scheme

    State

    TSCS is implementing a novel community health insurance scheme called the Aarogyasri Scheme. The primary programme of the State Government's health efforts, Aarogyasri aims to give the underprivileged access to high-quality medical care.

    Families with white cards who are below the poverty line can receive financial assistance under the scheme of up to Rs. 5 lakhs per year for the treatment of their children affected by thalassemia. The program's goal is to increase the availability of high-quality medical care for Thalassemia disease treatment for families living below the poverty line. This care will be provided by Kamala Hospital & Research Centre (KHRC), a unit of TSCS, and will involve hospital stays, operations, and therapies.

    This programme is a useful example of how low-income households can get high-quality healthcare without using cash.

Milestones & Track Record

TSCS has grown from serving 20 patients in 1998 to over 3600 registered patients currently, and has established its own premises with comprehensive facilities in 2018-19.

Leadership Team

  • MR. CHANDRAKANT AGARWAL

    PRESIDENT

  • MRS. RATNAVALI KOTTAPALLI

    VICE PRESIDENT

  • MR SHYAM LOYA

    CHIEF PATRON

  • MR. NARESH RATHI

    CHIEF PATRON

Demographics & Structure

  • No. of Employees

    6-20

M&E

  • Internal, External Assessors

    No

Policies

  • Ethics and Transparency Policies

    No

  • Formal CEO Oversight & Compensation Policy

    No

Political & Religious Declarations

  • On Affiliation if any

    No

  • On Deployment Bias if any

    No

Registration Details

  • PAN Card

    AAATT4038K

  • Registration ID

    5359/1998

  • VO ID / Darpan ID

    TS/2017/0164568

  • 12A

    AAATT4038KE20206

  • 80G

    AAATT4038KF20206

  • FCRA

    010230860

  • CSR Registration Number

    Not Available

Location

  • Headquarters

    Door No. 8-13-95/1/C, Opp Lane to National Police Academy Raghavendra Colony, Shivarampalli, Rangareddy, Hyderabad, 500052

    Directions
  • Offices in Cities

Other Details

  • Type & Sub Type

    Non-profit
    Society

Website

YouTube 
LinkedIn 
Facebook 
Instagram