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Children

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Healthcare

Clubfoot is a congenital birth defect wherein one or both the feet are turned inwards, making it a leading cause of disability in children in the developing world. In India, every year 33,000 children are born with clubfoot i.e. India accounts for 20% of the global clubfoot births. Although clubfoot can very easily be treated, more than 85% of the affected children do not have access to treatment. The lack of access is on account of distance, lack of medical supplies, lack of trained healthcare providers, unawareness that clubfoot is a treatable problem and importance of completing treatment. Untreated clubfoot could have multi-fold and devastating effects on the child, the parents, the community and the economy. Physically, untreated clubfoot is extremely painful. At a social level, both the mother and child are considered cursed, isolated, children live with feelings of shame, loss of schooling, opportunities, discrimination, increased chances of sexual abuse, and inferiority complex. Economically, there is loss of employment opportunities, loss of GDP, and reduced capacity of each untreated patient. 
 Clubfoot can be very easily treated by the Ponseti method- a simple, effective low cost treatment that is well suited for low resource settings. In order to address the reasons of untreated clubfoot, MiracleFeet India’s program offerings include the following:<ol><li>Clubfoot Clinics: We establish weekly clubfoot clinic day(s) in select hospitals to ensure that parents of children with clubfoot have access at a reasonable distance and time. We partner mainly with the government and their hospitals and few charitable and trust hospitals.</li><li>Medical Training: Training healthcare workers and practitioners in the Ponseti Method.We provide basic, advanced and train the trainers courses.</li><li>Awareness, identification and referral: We have designed and implement an early identification and referral strategy so that a child is brought for clubfoot treatment before the age of 1 year. In our efforts to do so we leverage the government system and community health workers.</li><li>Counselling: Effective counselling and parent support go a long way in treatment adherence and dropout prevention.</li><li>Medical supplies: We provide medical supplies including free foot abduction braces (required in the maintenance phase) that have been designed in partnership with Stanford Design School’s Extreme Affordability course.</li></ol>Currently MiracleFeet India is present in 8 states- Uttar Pradesh, Himachal Pradesh, Haryana, Mizoram, Nagaland, Tripura, Madhya Pradesh and Maharashtra across 75 districts through 86 clinics. 
 Our aim is to ensure that no child in India should grow up disabled as a result of being born with clubfoot.In terms of impact our primary aim is to ensure that a child completes the entire course of treatment and can stand up, walk, play with their fully corrected feet. In the long term, against an investment of Rs. 35,000/- per child, the expected lifetime earnings are Rs. 42 lakhs. We also want to create awareness about clubfoot in the entire Indian community, rural and urban that clubfoot is a treatable birth condition and children can avail treatment (and should avail treatment) within one week of being born. This also includes addressing myths associated with clubfoot children and their mothers.Ensure that there are adequate Ponseti trained professionals in each district in India so that every child can access quality treatment.Ensure that free foot abduction braces are available to all children during the maintenance phase of their treatment.

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Help a child overcome disability due to clubfoot

Anushkaa Foundation for Eliminating Clubfoot (AFEC) is a non- profit organization registered in India in the year 2014. We are working to ensure that no child in India grows up disabled as a result of being born with clubfoot. Our objective is a pan India coverage of clubfoot treatment by the year 2025.Clubfoot is a congenital birth defect wherein one or both the feet are turned inwards, making it a leading cause of disability in children in the developing world. Based on a survey that was conducted, less than 13% of the children in the developing world access treatment.In India, every year 33,000 children are born with clubfoot, i.e. 20% of the global clubfoot births. Of these, more than 85% of the children do not have access to quality clubfoot treatment.Clubfoot can very easily be treated using the Ponseti Method- an effective, inexpensive, minimally invasive form of treatment, well suited to low resource settings. It is considered as the gold standard treatment for clubfoot. Treatment involves serial castings over 5-8-weeks, a minor outpatient surgical procedure called tenotomy and a foot abduction brace, worn while sleeping for 4-5 years to maintain the correction and reduce risk of relapse. The Ponseti Method is cost efficient and has been shown to be effective in more than 95% of the cases when done correctly.In India, we operate and administer our own clubfoot programs in partnership with the Government, as well as with charitable and private hospitals. Our partnership with the government tailors in the National Health Mission' s Rashtriya Bal Swasthya Karyakram's program that screens children for birth conditions-one of which is clubfoot.Our program offerings are:i) Clubfoot Clinics: We establish weekly clubfoot clinic day(s) in select hospitals to ensure that parents of children with clubfoot have access at a reasonable distance and timeii) Medical Training: Training healthcare workers and practitioners in the Ponseti Method. Training is provided by orthopedic doctors who are experts in the Ponseti Method and have years of experience in treating clubfootiii) Human Resources: We provide human resources in the form of Program Executives, Branch Managers and Program Managers to effect implementation of our program.iv) Technology: Technology is an integral part of our program. We have developed a web and mobile based app to include details of the patients, outreach activities, inventory etc.v) Outreach Strategy: We have designed and have commenced implementation of an early identification and referral strategy so that a child is brought for clubfoot treatment before the age of 1 year.vi) Counselling: Effective counselling and parent support go a long way in treatment adherence and dropout prevention.vii) Monitoring and Evaluation: We aggregate clinic level data to review performance, enable quality assurance, and support continuous quality improvementviii) Treatment Supplies: We provide treatment supplies including free foot abduction braces that are an essential aspect of the maintenance phase of the treatment.

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Anushree Kamath

Nikita Israni 

Anushkaa Foundation for Eliminating Clubfoot

This nonprofit is registered as a charitable trust under section 12A of India's Income Tax Act, 1961.

This nonprofit is registered under section 80G of India's Income Tax Act, 1961. This means you can deduct 50% of the donation you made through your tax return.

This nonprofit is registered under Foreign Contribution Regulation Act (FCRA), 2010. This means it can accept donations from foreign nationals.

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