
Campaign by Golden Butterflies Children's Palliative Care Foundation
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The Lancet estimates that 2.5 million children worldwide die every year requiring palliation, of whom, more than 98% are from developing regions. Further, 7 to 9 million children in the world, ranging from neonates to 18-21 years, could benefit from palliative care. A wide variety of children with life-threatening and life-limiting conditions require palliative care. These include children suffering from cancer, irreversible organ failures of heart, liver and/or kidney, cystic fibrosis, Duchenne muscular dystrophy, HIV/AIDS, neuromuscular or neurodegenerative disorders, severe cerebral palsy, and multiple disabilities.
To conduct activities for child patients, primarily in groups:
1. Play therapy with child patients, twice a month (SRMC-1, CTH-1)
2. Counseling visits to child patients at their home/hospital, twice a month
3. Art therapy with child patients, twice a year
4. Camp rainbow with child patients, twice a year (with YRG CARE)
The following activities are envisaged:
1. Training workshop on Palliative Care
2. Training workshop on Counselling
3. Training workshop on Art Therapy
4. Awareness generation programs for the general public
Training workshop on Art Therapy
End-to-end support provided to child patients suffering from terminal and/or chronic conditions like cancer, end-stage organ failure, HIV/AIDS.
Expected Outcome
1. Structured training workshops for interested people particularly college students
2. Mass awareness about palliative care
3. Unique training tools for counseling
Golden Butterflies Children's Palliative Care Foundation
Beneficiary Charity
Matthew R Uthup
Organiser
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