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Respite care for blind children having other multiple disabilities 

Differently Abled

Prakash B. Bal

Sobti is an organization created by parents, for parents. It works for a Life Long Rehabilitation of mainly Blind children/youngsters with Multiple Disabilities &amp; also those with various handicaps by running a Respite Care Facility. These Children and Youngsters would always require a considerable help in living a fruitful and happy life.The Respite Care Facility provides such an infrastructure along with trained manpower. These Children and Youngsters have a daily structured schedule which includes time for Exercises, Work(as per their capacity) and Recreation. Such facilities make it easier for these children/youngsters to have a happy &amp; a self-satisfying life!This is a niche field of work. Sobti needs financial stability to achieve this challenging objective. If many helping hands come forward to support Sobti, the arduous task of sustainable Rehabilitation of such Children/ Youngster would become less difficult, to bring a lasting change in the lives of the underprivileged.Please back our fundraiser so that together we can build a better India for all of us. Pledge your support, donate now! Note: For any concerns relating to tax benefit/certificate details please contact support@give.do

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DISABILITY IMPLICATIONS:The World Health Organization considers “Disabilities as an umbrella term, covering impairments, activity limitations, and participation restrictions. Disability is a complex phenomenon, reflecting an interaction between features of a person's body and features of the society in which he or she lives.” In India, more than 2% (2.8 crores) fall under the label of differently abled.Ideally speaking, the liberal and humanist framework of the Indian Constitution accepted by independent India more than six decades ago should have provided a solid foundation to act on the needs of its differently abled people. Unfortunately, a merely legislative approach has been preferred so far. Thereby, only token steps have been taken and the country remains largely “unfriendly” to the differently abled.A CURIOUS MIXTURE:In this situation differently abled stand no chance in securing any relief. The issue is also psychological, to the extent that, a common person is not interested in addressing any problem till he or she or the family is not personally facing the challenge. In addition, a curious mixture of thoughts and emotions simultaneously races through a “normal” Indian whenever he or she encounters such a differently-abled person. The first instinct, though most will not accept it, is to avoid any interaction with the differently abled person. Then if forced to interact, the exchange will be carried out in the fashion of a superior versus inferior/freak type of interaction. Working in the background will be a feeling of pity towards the differently abled person.MULTIPLE HANDICAPS:On this background it became essential for us - the Parents of blind children having other multiple disabilities such as Autism, Cerebral Palsy, Mental Retardation, Deaf &amp; Dumbness, etc. — to come together to form an organization and help ourselves in whatever way we can. This is how Sobti Parents Association was set up in 2004. Our organization is registered under the Trust and Society's Acts and we have been issued an 80G Certificate by the Income Tax Authorities.Incidentally, we may point out that many organizations are working to help disabled people, but most of them are limited to one handicap, either mental or physical. Ours is an organization that tries to help children and youngsters who are blind and also have multiple handicaps. Most of the members of our organization come from lower strata of the society and they do not have any financial or other means to help their children.RESPITE CARE:From a long-term perspective, such variously challenged children &amp; youngsters require a caregiving institution permanently. The Respite Care Facility is NOT an orphanage. The Respite Care Facility provides a healthy working and living environment as well as it helps these children and youngsters to maximize their limited potential to lead a happy and self-satisfying life. The children &amp; youngsters are looked after, helped and trained by professionals. In the management of the Facility, Parents also are involved, and Parents are not allowed to abandon their children at the Facility. Of course, the ultimate responsibility rests with the Parents.SERVICES OFFERED:1. Assessment of the potential of Blind boys/girls with multiple disabilities.2. Devising of individualized specific training program.3. Training in daily living skills.4. Training in Mobility.5. Training to improve cognition, communication and conversational abilities.6. Training for living in a structured daily schedule along with other boys/girls.7. Training in Vocational abilities.FACILITIES PROVIDED:1. To and fro Bus Transport from Thane City to Residential Vocational Centre at Tilsa, Taluka:Wada, District:Palghar.2. Well Furnished Separate Dormitories for boys and girls.3. Spacious Working Area.4. Fully equipped Kitchen and Dining Room.5. Trained and experienced Teachers.6. Professional Household Staff.7. Full Coverage by CCTV.8. If Required Emergency Medical Facilities are arranged.9. Water filtration plant with UV/RO.10. Solar electricity is provided for the center.FOOD &amp; OTHER ITEMS:The boarding (daily breakfast in the morning and evening, lunch, dinner, and tea twice a day) and lodging is provided at the Facility. Parents need to provide clothes, and items of daily living needs such as toothpaste, soap, hair oil, medicines prescribed by the doctors, etc.PROFESSIONAL CARE:The children stay at the Facility, for 3 weeks and then return home for 3 days, the cycle continues. The Facility is run and supervised by trained professionals. The Teacher to student ratio is 1:3. This makes it possible to provide personalized attention. The children and youngsters who attend the Centre, are being trained in various trades, such as artificial jewelry, food products, ornamental lamps, greeting cards etc. Care is taken to maintain personal hygiene. Also special care is taken to give the boys/girls prescribed medicines on time and as per schedule given by the Parents. These services and facilities can be availed by the boys/girls in Mumbai Metropolitan region. Sobti takes utmost care to make the stay of boys/girls comfortable and professional staff appointed is trained to provide all help and handle any eventuality - including death of both parents! Sobti would continue taking care of their beloved children.TRAVEL:The boys/girls living in Mumbai Metropolitan Region travel to Sobti's Residential Vocational Training Facility at Tilsa, Taluka-Wada, District-Palghar (about 2-hours journey from Thane) and they stay at the Facility for 3 weeks. Then after lunch on Thursday the boys/girls travel back to their homes.VACATION &amp; HOLIDAYS:During the extended holidays, such as - Ganapati Festival(1 week), Diwali Festival(2 weeks) and Summer Vacation(5 weeks) - Parents will have to take boys/girls home.REQUIREMENTS:The Facility has an area of 13500 sq. ft and has a capacity of 50 children/youngsters. The running cost of the Facility is around Rs. 25 Lakhs per year. This includes salaries of the staff, electricity and water charges, cost of provisions etc. The Facility is run and maintained exclusively on public support through donations of Cash &amp; Kind.APPEAL:Hence we appeal to you to provide substantial financial(Rs.6 crores) or other types of assistance so as to allow us to make more sustained efforts to provide suitable long term rehabilitation of blind children/youngsters having multiple disabilities.

Donations through Give Foundation, registered under section 80G of India's Income Tax Act, 1961 are tax-deductible.

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Lifelong support for Blind children/youngsters with Multiple Disabilities at Sobti

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