Sponsor Blood Units to Poor Patients with Hemophilia

Hemophilia Foundation helps underprivileged Hemophilic patients with timely, sufficient and appropriate treatment.

One unit of donation to this program helps cover the cost of 100 units of Factor VIII for poor hemophilia patients.

Hemophilia A, also called factor VIII deficiency, is a genetic disorder caused by missing or defective factor VIII, a clotting protein. People with hemophilia A bleed longer than other people. Bleeding can occur internally, into joints and muscles, or externally, from minor cuts, dental procedures or trauma. Hemophilia patients who can't afford timely, sufficient and appropriate treatment could end up with consequences such as permanent disability, HIV/AIDS, Hepatitis B/C infections, and even death.

Unfortunately, many patients suffering from hemophilia belong to Below Poverty Line (BPL) families. Due to the lifelong, incurable nature,and very expensive management of the disorder, the Antihemophilic Factor (AHF), it becomes difficult for families to meet expenses of the same. The requirement for AHF can be even more crucial in case of severe bleeding and surgical interventions. This is not a one-time expenditure, and the requirement for money occurs whenever an injury occurs.

Most men from such families are factory-workers, daily wage earners, rickshaw pullers, vegetable vendors, or household helps.

Hemophilia Foundation aims to help all such needy patients. They maintain a list of the most deserving patients based on the severity of the condition, as well as their family income. AHF is allocated to beneficiaries as and when required, and the units are procured and stored at the head office in Delhi. Whenever a local chapter is short of enough units, they send a request to the head office. The required units are sent to the chapter.

Once the units are received, the patients are notified for collection, and they take it to the hospital for transfusion. In cases where the volume from a certain area is high, the chapter sends it to the hospital and notifies the patients, who then directly go to the hospital for the transfusion.

A second installment is given only after receiving satisfactory proof that the first installment of AHF was properly utilized.

In case of the death of a beneficiary, or underutilized medicines by another patient, a new beneficiary is identified to be helped.

Hemophilia is a life-long condition and there is no upper limit to the treatment needed. A hemophilia patient may injure himself/herself on an average of 3-4 times a month. Hemophilia factor VIII costs Rs.12/- per unit. A minimum of 500-1000 units of AHF are required by a hemophiliac patient each ti me they sustain an injury. If the injury is severe, the number of AHF units needed increases.

Hemophilia Federation has presence through 79 chapters across all states.

When you donate to this program, you give a patient suffering from a life-threatening disease hope to live a normal life.