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RUCHI : Her Remarkable Journey

In early 2022, one-month-old, baby Ruchi arrived at PALNA, through the cradle at our gate. Born with multiple congenital conditions and weighing only 2.3 kg, Ruchi was dehydrated and medically fragile — but her feisty spirit, even then, was undeniable. In the medical check-up on arrival baby Ruchi was diagnosed with Nager Syndrome, a rare genetic disorder characterised by facial and limb deformities. She had complex craniofacial clefts which did not allow her to take any feed through her mouth or vocalise. Her condition required immediate medical intervention and long-term multi-disciplinary care.

From the very beginning, Ruchi was surrounded by a dedicated team of doctors, special educator, physiotherapists, caregivers, all working together to give her the best chance at life. Doctors at Lok Nayak Hospital and AIIMS, put surgical plans in place. In February 2023, she underwent her first complex facial plastic surgery. Despite post-surgical complications, she fought through recovery with incredible resilience. 

Over the next year, she continued with nasogastric feeding, and began rehabilitative therapies: occupational therapy, physiotherapy, speech stimulation, and special education. Her caregivers ensured she received the best possible nutritional support and stimulation in a loving environment.

In April 2025, Ruchi underwent her second surgery, repairing her lip and palate. This has enabled her to finally transition successfully from tube feeding to oral feeding — a huge milestone in her recovery.

Despite developmental delays, Ruchi has made remarkable progress. Her motor development is catching up, and she is now able to climb stairs, is able to vocalise, and follows simple commands. Her psychological assessments show steady improvements in social skills, and she joyfully participates in group play. Her caregivers celebrate each new word, smile, and step. She also interacts by saying "hello" and "bye-bye”.

Ruchi is currently under regular follow-up at AIIMS for upcoming surgical procedures and therapy sessions. Her journey is far from over, but her story is already a testament to the power of care, medical support, and love.

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Many fascinating stories tracing the life journeys of Palna children over the decades have been compiled into a book "The World of PALNA : A Refuge of Love and Hope". The book is available in online bookstores across the world, and all proceeds from its sale go towards supporting the children in PALNA.